Impacto da disseminação da informação sobre o Transtorno Do Espectro Autista: estudo misto exploratório
Abstract
Autism spectrum disorder, also known by its abbreviation ASD, is a condition
characterized by persistent deficits in two major areas: 1) social communication and
social interaction; and 2) restricted and repetitive patterns of behavior, interests, and
activities. This study evaluated the impact of disseminating information about autism
to family members and caregivers of autistic children. This research was configured as
a longitudinal exploratory mixed study (qualitative followed by quantitative). This type
of research is focused on the emergence of new ideas and analysis of contexts so that
the researcher has greater proximity to the subject. In the qualitative stage, the
informational demands of the population on autism spectrum disorder were mapped in
two scenarios, one in the Southeast and the other in the North region of Brazil. At this
stage, it was observed that the main informational demands of the population about
autism spectrum disorder are: family support, self-realization, characteristics of autism
spectrum disorder, diagnosis, self-care features, affective features, cognitive features,
communicational features, occupational features, origin of autism spectrum disorder,
prejudice, treatment and cure. In the quantitative stage, eight informational contents
were disseminated to 73 participants, caregivers of autistic children during the
psychological consultation, in 2024, in the Northern Region of Brazil. In the
dissemination process, the companions evaluated each of the contents, totaling 584
evaluations regarding the eight informational contents disseminated. Among the most
significant findings, it is worth highlighting that the study participants claim that the
information disseminated taught them something new (319, 54.6%), encouraged them
to learn more about the subject (251, 43.0%), helped them to better understand autism
(435, 74.6%) and prepared them to discuss autism with other people (361, 61.9%). As
a contribution to the field of Information Science, knowledge was explained and
systematized that can guide institutions, services and information systems that
prioritize the care of the community involved with autism spectrum disorder.
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