Sobrecarga dos cuidadores de crianças que necessitam de atenção especial à saúde: influência das demandas de cuidado e das práticas de atenção à saúde

Abstract

Objective: to explore the influence of care demands of children who need special attention to health and health care practices in the physical, emotional and social burden of caregivers. Method: observational, analytical, transversal design of a quantitative approach. 100 caregivers participated in the study, who answered the following research instruments: characterization tool; Burden Interview Scale for Informal Caregivers; Perception of Family-Centered Care- country version; Evaluation Instrument for Primary Health Care - Child Version. For statistical analysis, the Fisher's exact test, Spearman's correlation and univariate and multivariate linear regression analysis were used. Results: the majority of caregivers (57%) had moderate to severe overload. The mean score of physical, social and emotional overload was 47.99. Caregivers of children who require mixed care presented a 262.2 times greater chance of overload than caregivers of children who demand medication care. The domains of collaboration and support of the Family Centered Care Perception Scale - parents version, presented as factors associated with overload (p <0.05). In the multivariate linear regression model, the "longitudinality" variable maintained a significant relationship with the physical, social and emotional overload score of the caregivers of children who need special attention to health (p = 0.023). Conclusions: when recognizing the influence of care demands and health care practices on the caregivers' overload, the health professional can implement care strategies in order to reduce the burden and, consequently, increase the quality of care offered to these clients