Adaptação transcultural do programa iSupport para cuidadores familiares de pessoas que vivem com demência para o contexto brasileiro

Abstract

iSupport, developed by the World Health Organization (WHO), is an online tool that aims to increase access to mental health support for caregivers of people living with dementia. The objective of this study was to carry out a cross-cultural adaptation of the generic version of the WHO iSupport program for the Brazilian context. For this, two articles were developed: (1) iSupport-Brasil: Cross-cultural adaptation of the content of the iSupport program for people living with dementia; and (2) iSupport-Brasil: Preliminary results of usability and acceptability assessment by caregivers of people living with dementia. In the first one, the content was translated into Brazilian Portuguese by a professional translator trained in Psychology, with mastery of the original language of the content (English), and, after reviewing the material by the researchers, focus groups were held to analyze the content. translated. Participants were 24 family caregivers of people living with dementia and 24 health and aging professionals from three Brazilian regions. Participants were given access to a portion of the iSupport material for review. Semi-structured interviews were conducted between June and September 2019. All interviews were recorded and transcribed in full for further analysis. The proposed changes mainly referred to terms and actions that are common in Brazilian culture and that better represent the routine of caregivers. All suggestions were forwarded and approved by WHO. The second article was carried out in two stages. In step 1, the usability of the iSupport-Brasil online platform was evaluated by nine (former) family caregivers of people with dementia, using a self-administered online questionnaire about their perceptions of the platform's interface. The evaluation of the performance of tasks in the interface showed that most caregivers reported that the system has a user-friendly interface, assigning maximum grade (5 points) both to the system (55.6% of caregivers) and to the relevance of the system's content (77.8% of caregivers). In step 2, ten family caregivers of people with dementia answered self-administered online questionnaires about the perception and acceptability of the system, in addition to the System Usability Scale (SUS). Most caregivers indicated good levels of satisfaction and usefulness of the program, with 60.0% being very satisfied and 80.0% being very useful. Regarding acceptability, they indicated the program as very useful (80.0%), would recommend it to other caregivers (100.0%) and indicated a preference for doing the program in the online format. The SUS total score was 86.5 (±11.5) suggesting an excellent perception of the program's usability. From the suggestions of the participants, improvements were made to the program in relation to: style, aesthetics and functional requirements such as lack of feedback after answering the interface questions. It is hoped that the procedures adopted in this research can help in the cross-cultural adaptation of iSupport for use in other countries. As a product of this research, the interface of the iSupport-BR program is updated and ready to assess the effects of this intervention on the mental health of family caregivers of people living with dementia.